Saline Therapy for Dysautonomia: Week 5 and Beyond

Okay, so here's the thing, I was going to write this epic blog post series on saline therapy.

Updating you every week with an uplifting post about how amazing saline is and how much better I'm feeling.

Yeah, that didn't happen. I suppose if you've read my last entries (part 1 & part 2) you might have seen this coming. Anyway, here's an update over the last couple of weeks.

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Week 5

I need to thank the intern, he finally found a vein! So, thanks! No idea what your name was (sorry!) but still, really happy.

Week 7

A lot of poking around but my doctor found a vein after all. I came up with a new way to get my veins to stop getting crampy around the site. Turns out my nephew's cherry pit cushion does the trick just fine.

And that, folks, was all

2 weeks ago my doctor gave it another go, again, no luck. He found a vein (yay!) but about 5 minutes after he left the IV stopped dripping and it started to hurt like crazy.

I didn't want to pull out the needle at first so my mom started to head up my cherry pit cushion. By the time she got back there was a huge bulge on my arm next to the needle and I started to scream 'we need to take the needle out' ' it needs to get out now!'. Scared my mom shitless (sorry!). That was the end of that week :p

A month after my last saline infusion

Boohoo, it sucks! We arranged for a home nurse to come by last week, see if she could find a vein. After all, they have to deal with IVs every day. No luck there either, she tried, but she wasn't comfortable digging for a vein (can't blame her). She did suggest a couple of options I could try before having to think about a permanent port catheter.

Unfortunately (hey, what did you expect) my doctor didn't think it'd be worth it to get any kind of catheter. He said (after talking to the home nurse) that these kinds of catheters come with a lot of infections & bleeding risks.

Apparently, home nurses aren't allowed to access them at home, either. I'd have to go to a hospital or infusion center to get my IVs. Sort of defeats the whole point of getting a catheter and being able to have regular IVs.

My doctor's coming round tomorrow to see what my options are. He better come up with some good ones because I'm getting this show on the road and there is no stopping it. I'm working on a course/program/book for you all so stay tuned for that.

It's harder to get this thing (a.k.a. my website & business) going if I can't count on regular IVs but I'm sure we'll figure something out.

For now I'd love to hear from you, do you have a permanent/temporary catheter? How's that working for you? Can you get infusions at home? Leave a comment below.

Update

It's been a while since I wrote this and a bit has changed since then. My doctor's daughter has been coming round to give me my IVs, she's some sort of vein finding wizard. I've had an IV every week for about a month now & I'm really happy with the results. My blood pressure cuff  has been gathering dust on my desk so that's a great sign :).

Sarah

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ABOUT SARAH

Sarah is a certified health coach and trained pastry chef. She was diagnosed with gastroparesis almost 6 years ago. Since then she was diagnosed with gluten intolerance and dysautonomia. Her step by step systems help other spoonies combine going gluten-free with their other dietary restrictions, apply systems to use their spoons well and get support.